FDA updates blood donor deferral policy

This paranoid and completely flawed bit of nonsense, in response to the overdue lifting of the ban on blood donations from gay people, is suddenly making the rounds tonight in the hemo world, and I want to address and end it now, before it grows.

I actually have hemophilia AND I survived the hemocaust. My experience is first hand, and though I didn’t contract HIV I did get hepatitis. I’ve buried too many dear friends to count, and having lived with tragedy and death from my earliest days still greatly affects me. Speaking from that perspective, I have to say that I find it deplorable to exploit what happened to us by using it as a soapbox from which to express homophobic and wholly unscientific fears.

Gay donations absolutely will not put us, or anyone else, at risk. They aren’t even what caused the hemocaust. There was virtually no blood screening in the 70s, and donations were solicited largely from extremely high risk drug addicts and prisoners. Their contaminated blood was all commingled with clean donations, infecting it all, and that tainted pool of blood was used to make factor. The hemocaust happened because of industrial negligence, ignorance, greed, and putting technology into practice before it was ready, not because gay people exist. As a survivor, I’d really appreciate it if people who weren’t even around then would get educated about its realities before using our plight to spread their bigotry and irrational fear.

TL:DR – My hemophilia is not an excuse for your homophobia.

“First let me go ahead and say if you know me you know where I stand on this “equality” issue. But that is another ball game. I know in my heart what is correct and what values I will pass to my child, in which I hope he will grasp and pass on to his children. However when our government lifts a 30 year ban on gay men being able to give blood, you will most definitely see my tail feathers get ruffled. Which is exactly what happened today. Why why why if you are a gay man (knowing you have a higher risk of HIV and other diseases) would you want to give blood? My child has hemophilia and his blood does not clot. Hello? I infuse a clotting factor in my child every other day. Thankfully his factor is man made at this time. But who knows if he will ever need plasma or a blood transfusion. FDA do you want to now ensure me that I will not infect my child with a disease that could have been prevented if you did not fear that it would “offend” someone by changing something that was set in place to protect the general population 30 years ago? Hello a HIV/hepatitis outbreak DID happen in the past and CAN happen in the future! I will speak out about this, I will advocate for my child. I will not set back and be silent about this. I am a moma bear and I’m on a mission. Share this status and please please be aware if you ever need whole blood products of any kind!”

1 Comment

  1. Stormy
    May 11, 2016

    If you want to get read, this is how you sholud write.

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